Wednesday, February 29, 2012

Paying for it

I had the best days ever, and now I am paying for it.  Pretty typical gig that there is a one to two day lag on whatever I did to my feeling bad from it.  This Sunday I have felt as sick as I have for a year since my first clinical bleed.  I am pretty nauseous, when I get up and walk around I am a bit wobbly and disoriented in terms of balance.  Its like a light case of vertigo.  Its not terrible but I am not well.

Continuing through Monday and Tuesday I get twinges of vertigo when I turn too quickly and do mundane things like unloading the dishwasher.  Its not pleasant and I cannot do much of this before needing to lie down and let the nausea subside.

Fortunately I can sit in front of the computer a bit, its just turning my body and head that is slightly problematic.  I am starting a fun project organizing our 20,000 digital photos with Picasa and dealing with some old scans from my childhood.  Good times.  Its actually quite nice to help contemplate life to see the generations unfold like this before my eyes, especially the facial recognition that often gets my kids confused with me as a kid.  Sweet.

I had some awesome days Friday and Saturday, and would do it again, but clearly there are consequences of trying to live a more normal life.  It remains to be seen if there is a new-normal I can sign up for here.

I have an MRI scheduled in 10 days or so and a follow up with neurosurgeon in 2 weeks.  In light of my not being able to live a more normal life I am increasingly interested in revisting a surgical option here.

Saturday, February 25, 2012

Best Days Ever!

I had the best couple of days here with my family.  Pushed myself a bit and it was great.

First, Friday we go ice skating.  I realized while doing it that doing things like holding up kids while skating around the ice rink is likely generating internal pressures that are not good for me.   But its a blast.  Our kids are delighted with the experience, and we are having a great time.

Then, Saturday, its a beautiful day and we go hiking around Vasona lake reservoir.  I am not holding myself back much like I usually do these days.  Our kids are on bikes so this involves doing a little jogging at times to keep up and take care of them.  My wife and I have our hands full.  This is my little experiment to see if I can live a more normal life with this thing, of which I am not so sure.

Boy were these wonderful days with the family.  If I can have days like this with my condition life won't be so bad.

Friday, February 24, 2012

Twitching Eye

I am having a scary escalation of symptoms associated with my right eye.  Odd especially since I am seemingly as little stressed as I have been in all my life having taken off work for a whole month now and fairly mellow on the productivity side.

Anyway last night I lay awake and noticed my eye was twitching in my eyelid.  Sort of like what one would think REM sleep to entail except I was not asleep.  AHHHHH!!!!!

When I wake up in the morning its mostly gone, my eye is totally red, and I can notice a little more faint twitching when I look at my own eye in the mirror.  By the middle of the morning its done.

I have an annual appointment for MRI and neurosurgical consultation.  Time to get this done!